tag:blogger.com,1999:blog-78628520168124711932024-03-05T02:37:35.750-08:00NovedadesEnlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.comBlogger56125tag:blogger.com,1999:blog-7862852016812471193.post-89766842460178521242023-06-14T11:42:00.006-07:002023-06-14T11:42:41.311-07:00<p style="text-align: center;"><span style="font-family: helvetica; font-size: medium;"><span style="background-color: white;"><br /></span></span></p><p style="text-align: center;"><br /></p><p style="text-align: center;"><span style="font-family: helvetica; font-size: medium;"><span style="background-color: white;">El 11 de Mayo</span><span style="background-color: white; color: #050505; white-space: pre-wrap;"> festejamos a las mamas de nuestra gran familia Enlace, en donde hubo juegos, sorpresas y mucha diversión, muchas gracias a todas las mamas que nos acompañaron.</span></span></p><p style="text-align: center;"><br /></p><p style="text-align: center;"><span style="font-family: helvetica; font-size: medium;"></span></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjmGG6QQvXaAv_Lg7yzuZzJYG79ilr2n5LJ1xzh7peJgAdHxVJYwZXPJycdPTO4saqZf2cit-UrALa5JGezARLpRsO42fb4JwZZ95sb7yv6zsRfOgEGrNtl04MLfEA9ZnouSezFhixWSCY/s1600/WhatsApp+Image+2023-05-11+at+1.32.56+PM.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1200" data-original-width="1600" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjmGG6QQvXaAv_Lg7yzuZzJYG79ilr2n5LJ1xzh7peJgAdHxVJYwZXPJycdPTO4saqZf2cit-UrALa5JGezARLpRsO42fb4JwZZ95sb7yv6zsRfOgEGrNtl04MLfEA9ZnouSezFhixWSCY/w400-h300/WhatsApp+Image+2023-05-11+at+1.32.56+PM.jpeg" width="400" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixhtggJsVqpyoxO-AvSw6RPRW_mYVgHvBNIoCEmNhKF8FqPAZ4SKBxAxlwlUk4RufP6yZrkU54m0QcUdokqlEpzd3BWv4P53LCjQ9q9boQJ-1tAzrsLMmrCqVCHc8T4h2vndTX56Y32Ft_dq0qdhcVoDCZYtgMp3n0jLwvEWwhGUIWRDa0pBSqBaNW/s4032/IMG_2060.JPG" imageanchor="1" style="margin-left: 1em; 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text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><br /></div><span style="font-family: helvetica; font-size: medium;"><div class="separator" style="clear: both; text-align: center;"><br /></div><br /><div class="separator" style="clear: both; text-align: center;"><div class="separator" style="clear: both; text-align: center;"><br /></div><br /><br /></div><br /><span style="background-color: white; color: #050505; white-space: pre-wrap;"><br /></span></span><p></p><div class="x11i5rnm xat24cr x1mh8g0r x1vvkbs xtlvy1s x126k92a" style="animation-name: none !important; background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; margin: 0.5em 0px 0px; overflow-wrap: break-word; transition-property: none !important; white-space: pre-wrap;"><div dir="auto" style="animation-name: none !important; font-family: inherit; transition-property: none !important;"><br /></div></div>Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-14199701067786535862023-06-14T11:30:00.005-07:002023-06-14T11:31:43.541-07:00<p> </p><p style="text-align: center;"><span style="color: #6aa84f; font-family: helvetica; font-size: large;"><b><i>INFORME ANUAL 2022</i></b></span></p><p style="text-align: center;"><span style="color: #6aa84f; font-family: helvetica; font-size: large;"><b><i><br /></i></b></span></p><p style="text-align: center;"><span style="color: #6aa84f; font-family: helvetica; font-size: large;"><b></b></span></p><div class="separator" style="clear: both; text-align: center;"><span style="color: #6aa84f; font-family: helvetica; font-size: large;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhF4letNMbX9uUN2Bpu4sIKoLzw7YyFGWjRpeW7XEkbSi9SJtNvQmIOnDwV6SFaZr1QTlgaB1q6bI9O0JckAFRwukfw_i5QxXhqrBJ-g0s9-OQgMEXCpT9g5XSIJrtjuvTrtWidqIC8xrfHZeNdzT9fwlLhNT0gKgSVEOjqwRq9z4fjpEgklTFD6wou/s1217/Resumen%20Informe%202022-01-01.png" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="786" data-original-width="1217" height="290" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhF4letNMbX9uUN2Bpu4sIKoLzw7YyFGWjRpeW7XEkbSi9SJtNvQmIOnDwV6SFaZr1QTlgaB1q6bI9O0JckAFRwukfw_i5QxXhqrBJ-g0s9-OQgMEXCpT9g5XSIJrtjuvTrtWidqIC8xrfHZeNdzT9fwlLhNT0gKgSVEOjqwRq9z4fjpEgklTFD6wou/w448-h290/Resumen%20Informe%202022-01-01.png" width="448" /></a></b></span></div><span style="color: #6aa84f; font-family: helvetica; font-size: large;"><b><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzkd5PVQbiqktb5rwaDSNuVc-8PK2qgC-WsgtxCvJnrq7GYbJVqVYoc-b3kCmK2_Gp45AycMi7kxOK1rfZxNfmtBLcg2GArvNsfVr7dd0Ck1IVtZb2FtKE7zd6ucStFxhnVciMX7jSL7XfSCnMdYO94Xm1dKXHxYk63rEp6S680raRUbiSsoL_g0sg/s1217/Resumen%20Informe%202022-01-02.png" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="786" data-original-width="1217" height="294" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzkd5PVQbiqktb5rwaDSNuVc-8PK2qgC-WsgtxCvJnrq7GYbJVqVYoc-b3kCmK2_Gp45AycMi7kxOK1rfZxNfmtBLcg2GArvNsfVr7dd0Ck1IVtZb2FtKE7zd6ucStFxhnVciMX7jSL7XfSCnMdYO94Xm1dKXHxYk63rEp6S680raRUbiSsoL_g0sg/w454-h294/Resumen%20Informe%202022-01-02.png" width="454" /></a></div><br /><i><br /></i></b></span><p></p>Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-18854103502947389532022-09-29T10:40:00.000-07:002022-09-29T10:40:06.298-07:00Encuentro Anual 2022<p style="text-align: left;"><span lang="ES-TRAD" style="background-color: white; color: #050505; font-family: Arial, "sans-serif"; font-size: 15px; text-align: justify; white-space: pre-wrap;">En este año se llevo a cabo nuestro Encuentro anual 2022 lo realizaremos</span><span style="background-color: white; color: #050505; font-family: Arial, "sans-serif"; font-size: 15px; text-align: justify; white-space: pre-wrap;"> los días 13 y 14 de Agosto; el sábado 13 se impartieron conferencias magnas y talleres para los niños y jóvenes en las instalaciones de la facultad de filosofía y letras de la UACH campus 1, en un horario de: 9:00-2:00, el domingo 14 se realizó un día de integración familiar con la ayuda de animadores y show de entretenimiento en el salón del sindicato de trabajadores al servicio de la UACH.</span></p><div class="l7ghb35v kjdc1dyq kmwttqpk gh25dzvf jikcssrz n3t5jt4f" style="animation-name: none !important; background-color: white; color: #050505; font-size: 15px; margin: 0.5em 0px 0px; overflow-wrap: break-word; transition-property: none !important; white-space: pre-wrap;"><div dir="auto" style="animation-name: none !important; transition-property: none !important;"><p class="MsoNormal" style="text-align: justify;"><span style="font-family: "Arial","sans-serif"; mso-ansi-language: ES-MX; mso-fareast-font-family: "Times New Roman";">El objetivo </span><span style="font-family: "Arial","sans-serif"; mso-ansi-language: ES-MX;">fue la convivencia como asociación, así como la motivación para sobrellevar las
enfermedades de tipo Duchenne y Becker, que las familias se conozcan entre sí, exista una empatía entre ellas y sobre todo puedan estar informadas sobre los tratamientos necesarios para el cuidado de quienes la padecen, así como los avances científicos al respecto y de igual forma, que el personal de Enlace pueda estar en contacto con los beneficiarios y sus familias para apoyarlas y
motivarlas.</span></p><div class="separator" style="clear: both; text-align: center;"><span style="font-family: helvetica; text-align: left;">Gracias a todos nuestros ponentes!! </span></div><p></p><div class="l7ghb35v kjdc1dyq kmwttqpk gh25dzvf jikcssrz n3t5jt4f" style="animation-name: none !important; margin: 0.5em 0px 0px; overflow-wrap: break-word; transition-property: none !important;"><div dir="auto" style="animation-name: none !important; transition-property: none !important;"><span style="font-family: helvetica;">Lic. Raul Rios representante de AMASFAC</span></div><div dir="auto" style="animation-name: none !important; transition-property: none !important;"><span style="font-family: helvetica;">Dra. Yuriria Rufino<span style="animation-name: none !important; transition-property: none !important;"></span></span></div><div dir="auto" style="animation-name: none !important; transition-property: none !important;"><span style="font-family: helvetica;">Sra. <span style="animation-name: none !important; transition-property: none !important;"><a style="animation-name: none !important; color: #385898; cursor: pointer; transition-property: none !important;" tabindex="-1"></a></span>Leticia Sarabia </span></div><div dir="auto" style="animation-name: none !important; transition-property: none !important;"><span style="font-family: helvetica;">Al Centro de capacitación Cruz Roja </span></div><div dir="auto" style="animation-name: none !important; transition-property: none !important;"><span style="font-family: helvetica;">Lic. en Psic y Tanatologa Katherine Minjares</span></div></div><div class="l7ghb35v kjdc1dyq kmwttqpk gh25dzvf jikcssrz n3t5jt4f" style="animation-name: none !important; margin: 0.5em 0px 0px; 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</div></div>Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-78113888831753538442022-05-03T08:16:00.011-07:002022-05-03T13:28:15.552-07:00Informe anual 2021 <p><span style="font-family: times;"><br /></span></p><h4 style="text-align: left;"><span style="background-color: white; color: #050505; font-weight: normal; white-space: pre-wrap;"><span style="font-family: helvetica;">Como parte de nuestro modelo de transparencia y buenas practicas, el pasado jueves 28 de Abril se llevó a cabo nuestro informe anual 2021.</span></span></h4><p><span style="background-color: white; color: #050505; font-size: 15px; white-space: pre-wrap;"><br /></span></p><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q" style="animation-name: none; background-color: white; margin: 0.5em 0px 0px; overflow-wrap: break-word; transition-property: none;"><div dir="auto" style="animation-name: none; transition-property: none;"><div class="separator" style="clear: both; color: #050505; font-family: inherit; font-size: 15px; text-align: center; white-space: pre-wrap;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiP2IFjP4nLMfCzpLReQrosROjq0EEQDVQ2e3nvpy2hLRaTgR3h3FHbMlNfyEYwW6_hsIg5CSWxGlorT16VF2qbkxo6pQB9nYs9dMzvxeLfLUdMFLrfVpC7UPR-2WkAeMh22mc8FWHmodQ9b1_ZujoMHhv6OcrjLFVv3NpWN9-yT0GMY0xfHiJ5HSVl/s1650/5.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1275" data-original-width="1650" height="247" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiP2IFjP4nLMfCzpLReQrosROjq0EEQDVQ2e3nvpy2hLRaTgR3h3FHbMlNfyEYwW6_hsIg5CSWxGlorT16VF2qbkxo6pQB9nYs9dMzvxeLfLUdMFLrfVpC7UPR-2WkAeMh22mc8FWHmodQ9b1_ZujoMHhv6OcrjLFVv3NpWN9-yT0GMY0xfHiJ5HSVl/s320/5.jpg" width="320" /></a></div><br /><div class="separator" style="clear: both; color: #050505; font-family: inherit; font-size: 15px; text-align: center; white-space: pre-wrap;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4mZ6wLTZ9h2x9w5-NXeyu_PmcGlIeerQIfv-564MvQ0OagmAK4qIOZhzfv-_oiC2Br8dVoruAif2nj_KrHDcwnMIuakgj-6TG-JzSKbkfMzyH-f3lriDEUvqOQzUoyAH-VOweMZr3lh8ygtbJDdhB17OxQinxkw70mcUQPxuf0CCxQBjC2vFRVjsR/s1650/6.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1275" data-original-width="1650" height="247" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4mZ6wLTZ9h2x9w5-NXeyu_PmcGlIeerQIfv-564MvQ0OagmAK4qIOZhzfv-_oiC2Br8dVoruAif2nj_KrHDcwnMIuakgj-6TG-JzSKbkfMzyH-f3lriDEUvqOQzUoyAH-VOweMZr3lh8ygtbJDdhB17OxQinxkw70mcUQPxuf0CCxQBjC2vFRVjsR/s320/6.jpg" width="320" /></a></div><br /><div class="separator" style="clear: both; color: #050505; font-family: inherit; font-size: 15px; text-align: center; white-space: pre-wrap;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0DtKysQUALS5YrXTbUmSk-LwSbK-_UN270LQhBzlNrMK2_vV7KhfQM2Gqhbn27juEGO3EORRTzZ6PpE4-2JhXNhe9QIYhGwnT73KfIzO3yV0U6UDPKngApzmvqyNWOGwq_3oQJzHC3ylF-J71-t4kMm9ZZwMCCZCIXa6DH543wEksNhBlFthUyKry/s1650/1.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1275" data-original-width="1650" height="247" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0DtKysQUALS5YrXTbUmSk-LwSbK-_UN270LQhBzlNrMK2_vV7KhfQM2Gqhbn27juEGO3EORRTzZ6PpE4-2JhXNhe9QIYhGwnT73KfIzO3yV0U6UDPKngApzmvqyNWOGwq_3oQJzHC3ylF-J71-t4kMm9ZZwMCCZCIXa6DH543wEksNhBlFthUyKry/s320/1.jpg" width="320" /></a></div><br /><div class="separator" style="clear: both; color: #050505; font-family: inherit; font-size: 15px; text-align: center; white-space: pre-wrap;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJYiTsThro7bMN7Z81VWUpiQjc2nGuhRwTS71uKBu3wm43F6FCqZbj9bBCgrWQ1hPI8cEsBZuX572l2dn8od5qCKDxwrpHc96YaPwbGcHvMgx3RqKCDuMnPXiUwvHq-0D4LqC-xGtVGEJ895mTfiuLtmPYFoQm17U-QkUKRcTQ0AhavMy_49nEBwKc/s1650/14.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1650" data-original-width="1275" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJYiTsThro7bMN7Z81VWUpiQjc2nGuhRwTS71uKBu3wm43F6FCqZbj9bBCgrWQ1hPI8cEsBZuX572l2dn8od5qCKDxwrpHc96YaPwbGcHvMgx3RqKCDuMnPXiUwvHq-0D4LqC-xGtVGEJ895mTfiuLtmPYFoQm17U-QkUKRcTQ0AhavMy_49nEBwKc/s320/14.jpg" width="247" /></a></div><br /><div class="separator" style="clear: both; color: #050505; font-family: inherit; font-size: 15px; text-align: center; white-space: pre-wrap;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg-y9lW4eD7is8C5AsC3Wl7EhxM3t8QOb9r_xnac5BlWXI0xadg_tNe4Y22N3VP0oQZ-f4saad0v2ffijBXmHJLzkdXXuKSDEoBsj4NKZCzq2wupOZC3AieJ3W04SRWb1DQHa6z5KQnQTcvYmH6s-LEt-60LQCVCvG4prtUpF8ud3OotxpP0NrgKkUv/s1650/1%20(2).jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1650" data-original-width="1275" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg-y9lW4eD7is8C5AsC3Wl7EhxM3t8QOb9r_xnac5BlWXI0xadg_tNe4Y22N3VP0oQZ-f4saad0v2ffijBXmHJLzkdXXuKSDEoBsj4NKZCzq2wupOZC3AieJ3W04SRWb1DQHa6z5KQnQTcvYmH6s-LEt-60LQCVCvG4prtUpF8ud3OotxpP0NrgKkUv/s320/1%20(2).jpg" width="247" /></a></div><div dir="auto" style="animation-name: none; color: #050505; font-family: inherit; font-size: 15px; transition-property: none; white-space: pre-wrap;"><br /></div><div dir="auto" style="animation-name: none; transition-property: none;"><br /></div><br /><span class="pq6dq46d tbxw36s4 knj5qynh kvgmc6g5 ditlmg2l oygrvhab nvdbi5me sf5mxxl7 gl3lb2sf hhz5lgdu" style="animation-name: none; color: #050505; display: inline-flex; font-family: inherit; font-size: 15px; height: 16px; margin: 0px 1px; transition-property: none; vertical-align: middle; white-space: pre-wrap; width: 16px;"><br /></span></div></div>Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-87165533691231526942022-03-25T10:48:00.000-07:002022-03-25T10:48:41.191-07:00¿Qué tan importante es para ti poder hacer lo que quieras y cuando quieras?<p> </p><div class="separator" style="clear: both; text-align: center;"><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='420' height='350' src='https://www.blogger.com/video.g?token=AD6v5dwFluHX9IPnOqjOKOIBBq_vg6qvDHx0JCX55PN6nbmjvOvEITfinUXaJRK0gegfVLL8NTn7_VhjZ3J_oJmYvA' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;">Video: Independencia y Autonomía. </div><br /><p></p>Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-645690393561721602021-12-22T08:31:00.001-08:002021-12-22T08:31:34.829-08:00Posada-Caravana Navideña de Enlace<p> </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/a/AVvXsEgqKMtT8_jKOaTKJXc3-FVDmUYWH1CAUfmzgXctejdYB341hQCgotL8NFaeHaphbSVdwXNa2VHfC2qW2vCKGznSUMuXpHhCNvOcG5Y4BUd1Mv68Wx1Gvl5Vd5iDUv8EifjmPzP8ra0rfD031BzLIb2xEPVi_h87F0Ad5pdShtjGI25ysVg5ZL74K1Yq=s815" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="766" data-original-width="815" height="301" src="https://blogger.googleusercontent.com/img/a/AVvXsEgqKMtT8_jKOaTKJXc3-FVDmUYWH1CAUfmzgXctejdYB341hQCgotL8NFaeHaphbSVdwXNa2VHfC2qW2vCKGznSUMuXpHhCNvOcG5Y4BUd1Mv68Wx1Gvl5Vd5iDUv8EifjmPzP8ra0rfD031BzLIb2xEPVi_h87F0Ad5pdShtjGI25ysVg5ZL74K1Yq=w320-h301" width="320" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/a/AVvXsEhCQ6hsdtu-6y-h3XcvB85N71wCVuEg-n-5tt0VkMVtVCCDiAFtZ3_0qgxp4tkjsX4h2379EMnjW01eg6dGB6YQRBhJb8xwno6EZPd-gPM_IjgnPjziUgeQU28SUt4negZrh_EjPdb691WyLb5y8VkHa-qkpN9vnZerhiFs0Y00qh-c__BPvRuz-zqH=s1071" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="646" data-original-width="1071" height="193" src="https://blogger.googleusercontent.com/img/a/AVvXsEhCQ6hsdtu-6y-h3XcvB85N71wCVuEg-n-5tt0VkMVtVCCDiAFtZ3_0qgxp4tkjsX4h2379EMnjW01eg6dGB6YQRBhJb8xwno6EZPd-gPM_IjgnPjziUgeQU28SUt4negZrh_EjPdb691WyLb5y8VkHa-qkpN9vnZerhiFs0Y00qh-c__BPvRuz-zqH=s320" width="320" /></a><a href="https://blogger.googleusercontent.com/img/a/AVvXsEi9VEj3t_79rREZ32zNcjkZQFA51SCncIXshcUphaxJqXtI_5safroyhChcu0gpXyw1XoKYvTpY4-UKDmKflO5b-uZXG0rQr2WY3VFqNYqHlGUfzo5IADpkMvHS-RAFtN7pS0He50YK7Cb2VaXmAuVjdtAwV15KY0KKm5gZm5efVsCvktct0ygHUU0f=s798" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="766" data-original-width="798" height="192" src="https://blogger.googleusercontent.com/img/a/AVvXsEi9VEj3t_79rREZ32zNcjkZQFA51SCncIXshcUphaxJqXtI_5safroyhChcu0gpXyw1XoKYvTpY4-UKDmKflO5b-uZXG0rQr2WY3VFqNYqHlGUfzo5IADpkMvHS-RAFtN7pS0He50YK7Cb2VaXmAuVjdtAwV15KY0KKm5gZm5efVsCvktct0ygHUU0f=w200-h192" width="200" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/a/AVvXsEhrJGJe3kLF6LohfvoXVDLAllGmoXVHRzNpKdMp-y2gdKLKT5cm5TNoXeX_fqXqBqDxaunHIXLqhqBYn4zZave1ewkWRwH5UNSrTHz0W-ebvSCbfwttbFElda6TDBRd1xi_7jgwal9mRVOuVHyG9WxvEYZT14eRfQZw7dLnWdxL0XkBHhvNYLU4Fzw8=s833" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="647" data-original-width="833" height="249" src="https://blogger.googleusercontent.com/img/a/AVvXsEhrJGJe3kLF6LohfvoXVDLAllGmoXVHRzNpKdMp-y2gdKLKT5cm5TNoXeX_fqXqBqDxaunHIXLqhqBYn4zZave1ewkWRwH5UNSrTHz0W-ebvSCbfwttbFElda6TDBRd1xi_7jgwal9mRVOuVHyG9WxvEYZT14eRfQZw7dLnWdxL0XkBHhvNYLU4Fzw8=s320" width="320" /></a></div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><span style="background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; text-align: start; white-space: pre-wrap;">La Gran Familia Enlace disfrutaron de la Posada-Caravana, en la ruta que fue: f</span><span style="background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; text-align: left; white-space: pre-wrap;">otos con el marco navideño de Enlace, e</span><span style="background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; text-align: left; white-space: pre-wrap;">ntrega de regalos a beneficiarios, e</span><span style="background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; text-align: left; white-space: pre-wrap;">ntrega de comida a familias, p</span><span style="background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; text-align: left; white-space: pre-wrap;">iñata y entrega de bolsita de dulces. </span></div><div class="separator" style="clear: both; text-align: center;"><span style="background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; text-align: left; white-space: pre-wrap;"><br /></span></div><div class="separator" style="clear: both; text-align: center;"><span style="background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; text-align: start; white-space: pre-wrap;">En ciudad Juárez disfrutaron de una convivencia familiar con una agradable comida.</span></div><div class="separator" style="clear: both; text-align: center;"><span style="background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; text-align: start; white-space: pre-wrap;"><br /></span></div><div class="separator" style="clear: both; text-align: center;"><span style="background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; text-align: start; white-space: pre-wrap;">¡Les deseamos felices fiestas!</span></div><br /><p><br /></p>Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-77384743585443124902021-09-02T09:43:00.001-07:002021-09-02T09:43:48.529-07:00Encuentro Anual Virtual 2021<p><br /></p><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjivSw_CwPiinbRElyhtGgCLaAeMuNR4n2qgyoIU0rNGMi9FbBlG7siRxar8jkwaQxpjWr399Km1LS1fGrPx2gN6clWFTaDw0adZFT_-_IAljIrssswyeLJ5S76VgC8RrHcLqVFa8aaIrQ/s1335/Conferencias+6.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1208" data-original-width="1335" height="158" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjivSw_CwPiinbRElyhtGgCLaAeMuNR4n2qgyoIU0rNGMi9FbBlG7siRxar8jkwaQxpjWr399Km1LS1fGrPx2gN6clWFTaDw0adZFT_-_IAljIrssswyeLJ5S76VgC8RrHcLqVFa8aaIrQ/w175-h158/Conferencias+6.png" width="175" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0vz5ta6JXQ5mQcimYft5wrkP2ME6J107b3sWAN__meszbaa4XEOIYGMQbpa6FmDT1Xk3rKomEaWlow1nORVuFiJ70UCw11zGAF9A55B5wwCI-k8Fq9F4L0FwWMCgOwAfNrdw7efeOZe8/s1332/Conferencias+1.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1190" data-original-width="1332" height="156" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0vz5ta6JXQ5mQcimYft5wrkP2ME6J107b3sWAN__meszbaa4XEOIYGMQbpa6FmDT1Xk3rKomEaWlow1nORVuFiJ70UCw11zGAF9A55B5wwCI-k8Fq9F4L0FwWMCgOwAfNrdw7efeOZe8/w174-h156/Conferencias+1.png" width="174" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUTtyk9REKjBo9-2M-AAjQ2cPQuH9tOamL7Uk6Qc-FISRLgDGV-wT9RKl2e9p4pYysw_D0pMa8Seyo7_446SLAQpPdSDBCwKz5LA0dOgVxVS4CpgIURn2G5s2tnKlGd20EfmWg28LAPYk/s1335/Conferencias+4.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1256" data-original-width="1335" height="158" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUTtyk9REKjBo9-2M-AAjQ2cPQuH9tOamL7Uk6Qc-FISRLgDGV-wT9RKl2e9p4pYysw_D0pMa8Seyo7_446SLAQpPdSDBCwKz5LA0dOgVxVS4CpgIURn2G5s2tnKlGd20EfmWg28LAPYk/w168-h158/Conferencias+4.png" width="168" /></a></div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxNCvlihKJyqJX7OyTYC5HhPt_l2QxQD_OKLx3kKhF6yPKXGkx2tVJ8viqcJZakFTltTf9F_4UX5kCpvFOR1o610c5QDwEnNvUJDgfiF0HBGN4m60SW_CjW5IHfipW5RXS5_45-04fZB0/s1058/Conferencias+8.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="518" data-original-width="1058" height="188" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxNCvlihKJyqJX7OyTYC5HhPt_l2QxQD_OKLx3kKhF6yPKXGkx2tVJ8viqcJZakFTltTf9F_4UX5kCpvFOR1o610c5QDwEnNvUJDgfiF0HBGN4m60SW_CjW5IHfipW5RXS5_45-04fZB0/w383-h188/Conferencias+8.png" width="383" /></a></div><div class="separator" style="clear: both; text-align: center;"><br /></div><p style="text-align: center;"><span style="background-color: white;"><span style="color: #050505; font-family: Segoe UI Historic, Segoe UI, Helvetica, Arial, sans-serif;"><span style="font-size: 15px; white-space: pre-wrap;">Como cada año se realizó el Encuentro Anual, esta vez de manera virtual para todas las familias de Enlace. Nuestro programa se dividió en dos días y consistió en: </span></span></span><span style="background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; white-space: pre-wrap;">Taller para niños, menores de 14 años y</span><span style="background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; white-space: pre-wrap;"> Taller para jóvenes, mayores de 15 años; seguido por una </span><span style="background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; white-space: pre-wrap;">Jornada de capacitaciones médicas para padres y madres de la Familia Enlace. </span></p>Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-12950123006949306282021-08-31T13:11:00.003-07:002021-08-31T13:11:38.322-07:00 Informe Anual 2020 <p> </p><div class="kvgmc6g5 cxmmr5t8 oygrvhab hcukyx3x c1et5uql ii04i59q" style="animation-name: none !important; background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; margin: 0px; overflow-wrap: break-word; transition-property: none !important; white-space: pre-wrap;"><div dir="auto" style="animation-name: none !important; font-family: inherit; transition-property: none !important;"><span class="pq6dq46d tbxw36s4 knj5qynh kvgmc6g5 ditlmg2l oygrvhab nvdbi5me sf5mxxl7 gl3lb2sf hhz5lgdu" style="animation-name: none !important; display: inline-flex; font-family: inherit; height: 16px; margin: 0px 1px; transition-property: none !important; vertical-align: middle; width: 16px;"></span><span style="font-family: inherit;"><div style="text-align: center;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3XQueeU8n4tHPwdEv1PQqxSgmIdOEtksUjVScMVp4caUYUv9F3-GnMLzHQ-LQUBlJYhXpJuDIg4qqAyyk_QaW9Md2wZg0CDgPLITkE6VmHldn1VwgOYU0jkMt7CSLWCtq0LxGnMSyodU/s1293/Invitaci%25C3%25B3n+para+Informe+PagWeb.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1262" data-original-width="1293" height="390" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3XQueeU8n4tHPwdEv1PQqxSgmIdOEtksUjVScMVp4caUYUv9F3-GnMLzHQ-LQUBlJYhXpJuDIg4qqAyyk_QaW9Md2wZg0CDgPLITkE6VmHldn1VwgOYU0jkMt7CSLWCtq0LxGnMSyodU/w400-h390/Invitaci%25C3%25B3n+para+Informe+PagWeb.png" width="400" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><br /></div></div></span></div><div dir="auto" style="animation-name: none !important; font-family: inherit; text-align: center; transition-property: none !important;"><span style="font-family: inherit;">Enlace Distrofia Muscular Duchenne- Becker, A.C. presentó su Informe Anual 2020 de manera virtual.</span></div><div dir="auto" style="animation-name: none !important; font-family: inherit; text-align: center; transition-property: none !important;"><span style="font-family: inherit;">Los invitamos a verlo en el siguiente link:</span></div><div dir="auto" style="animation-name: none !important; font-family: inherit; text-align: center; transition-property: none !important;"><span style="animation-name: none !important; font-family: inherit; transition-property: none !important;"><a class="oajrlxb2 g5ia77u1 qu0x051f esr5mh6w e9989ue4 r7d6kgcz rq0escxv nhd2j8a9 nc684nl6 p7hjln8o kvgmc6g5 cxmmr5t8 oygrvhab hcukyx3x jb3vyjys rz4wbd8a qt6c0cv9 a8nywdso i1ao9s8h esuyzwwr f1sip0of lzcic4wl py34i1dx gpro0wi8" href="https://drive.google.com/file/d/1lQzmpy3UEHw33_rawxc6M7Y8SELz2B4w/view?usp=sharing&fbclid=IwAR1jXDUQAo0fY0dTFC1yvXqFMB5coO2wRaFoD0BadfTc-qIsOk24Jfnj09I" rel="nofollow noopener" role="link" style="-webkit-tap-highlight-color: transparent; animation-name: none !important; background-color: transparent; border-color: initial; border-style: initial; border-width: 0px; box-sizing: border-box; cursor: pointer; display: inline; font-family: inherit; list-style: none; margin: 0px; outline: none; padding: 0px; text-align: inherit; text-decoration-line: none; touch-action: manipulation; transition-property: none !important;" tabindex="0" target="_blank">https://drive.google.com/.../1lQzmpy3UEHw33.../view...</a></span><span style="font-family: inherit;"> </span></div><div dir="auto" style="animation-name: none !important; font-family: inherit; text-align: center; transition-property: none !important;">Agradecemos a nuestro Equipo Médico, Padrinos y Equipo Operativo por su apoyo brindado.</div><div dir="auto" style="animation-name: none !important; font-family: inherit; text-align: center; transition-property: none !important;"><br /></div><div class="separator" style="clear: both; text-align: center;"><br /></div><br /><div dir="auto" style="animation-name: none !important; font-family: inherit; text-align: center; transition-property: none !important;"><br /></div></div>Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-45563212653507254992020-12-07T13:08:00.004-08:002020-12-07T13:08:59.761-08:0020 aniversario de Enlace Distrofia Muscular Duchenne-Becker, A.C. <p> </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgyeSKluVRyyhux2ZSK5-JFWhJJqPEt5RW3klgxr9UKzIGTs8_XVqSDdKZFilhDHYtINO4RcrY1ZXAfRxKl28cY-38kQylNlnV8KXaPVvYSACzEj2Gv6aIOgDBL6VSDGCJPaBHUkV2o5iU/s896/Globos11.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="759" data-original-width="896" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgyeSKluVRyyhux2ZSK5-JFWhJJqPEt5RW3klgxr9UKzIGTs8_XVqSDdKZFilhDHYtINO4RcrY1ZXAfRxKl28cY-38kQylNlnV8KXaPVvYSACzEj2Gv6aIOgDBL6VSDGCJPaBHUkV2o5iU/s320/Globos11.png" width="320" /></a></div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><span style="background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; text-align: start;">Este año celebramos el 20 aniversario de Enlace Distrofia Muscular Duchenne-Becker, A.C. </span></div><div class="separator" style="clear: both; text-align: center;"><span style="background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; text-align: start;">Directora Ejecutiva: Patricia Batista, Directora Estratégica: Graciela Méndez, Procuración de Fondos: Silvia Navarro, Coordinación Administrativa: Elizabeth Sánchez, Fisioterapia: Mariana Flores, Comunicación y Visibilidad: Tania Cortés, Traslados: José Hernández.</span></div><div class="separator" style="clear: both; text-align: center;"><br style="background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; text-align: start;" /><span style="background-color: white; color: #050505; font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; text-align: start;">¡Felicidades Familia Enlace!</span></div><br /><p></p>Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-20543866827963822052020-03-04T12:47:00.002-08:002020-03-04T12:47:49.095-08:00Cómic "¡Soy mi Héroe!" <div class="separator" style="clear: both; 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"¡Soy mi Héroe!" es un cómic ideado por algunos de nuestros jóvenes, en el cual comparten sus experiencias y aprendizajes a lo largo de su vida, que luchan día a día con tanta motivación contra la Distrofia Muscular de Duchenne y Becker. </div>
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<br />Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com1tag:blogger.com,1999:blog-7862852016812471193.post-42431963547469880292020-01-09T12:55:00.001-08:002020-01-09T12:55:12.000-08:00Programa Angelitos 2019<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh3_wKY4p3OXlaZfZ8kM6O-lI46zHcDIyrQd2BnpMaCyi_ig63sSsPDWmb49dlJAesqUNzPkfPA9kaHMS5-BywYWwMKNo-VP2sXDxtvmY2ge3MlHRzIJHYMtQYDoVBMXYVsNfBqoB9sMBY/s1600/Angelitos5.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="768" data-original-width="1031" height="297" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh3_wKY4p3OXlaZfZ8kM6O-lI46zHcDIyrQd2BnpMaCyi_ig63sSsPDWmb49dlJAesqUNzPkfPA9kaHMS5-BywYWwMKNo-VP2sXDxtvmY2ge3MlHRzIJHYMtQYDoVBMXYVsNfBqoB9sMBY/s400/Angelitos5.png" width="400" /></a></div>
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Último evento del año de recaudación de fondos, celebrado en Fashion Mall con la ayuda de las familias de los beneficiarios de Enlace, el generoso apoyo de diversas empresas, shows de entretenimiento y voluntarios. </div>
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Agradecemos a toda la gente que se acerco a nosotros para brindar su granito de arena a una mejor calidad de vida a niños, jóvenes y adultos con Distrofia Muscular.</div>
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Nada es pequeño... ¡Cuando el amor es grande!. </div>
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Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-3160113093296105082020-01-09T11:53:00.000-08:002020-01-09T11:54:06.965-08:00Posada Enlace 2019<div class="separator" style="clear: both; text-align: center;">
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Tradicional posada en compañía de las familias y los beneficiarios de Enlace, tarde agradable para celebrar y convivir, en el que los niños y no tan niños recibieron regalos, piñatas, juegos, baile y muchas sorpresas por parte de los organizadores y voluntarios de la Secundaria Tec de Monterrey. </div>
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<br />Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-82894559456787549562019-10-23T08:01:00.001-07:002019-10-23T08:01:44.637-07:00Día de Concientización de la Distrofia Muscular Duchenne<div class="separator" style="clear: both; text-align: left;">
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<span style="background-color: white; color: #1c1e21; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">Como parte de esta conmemoración se realizaron "Jornadas Educativas" la primera plática se dio en la UVM Campus Chihuahua y la segunda </span><span style="background-color: white; color: #1c1e21; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">en CECyT 6 Chihuahua, ambas con la presencia de alumnos y maestros. </span></div>
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Además contamos con el apoyo de la Asociación Mexicana de Agentes de Seguros y de Fianzas, A.C. Sección Chihuahua en la realización de la Carrera Recreativa Amasfac 2019 8a Edición, la cual fue a beneficio de Enlace, en las instalaciones del Parque El Rejón.</div>
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¡Luchamos Unidos contra Duchenne!</div>
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<br />Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-20329725711876613832019-09-11T11:34:00.000-07:002019-09-11T11:35:28.865-07:00Encuentro Anual 2019<div class="separator" style="clear: both; text-align: center;">
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Encuentro Anual de familias y beneficiarios de Enlace, contamos con conferencias magnas para los padres y madres de familia, Talleres de Psicología, Robótica y dinámicas para los niños, jóvenes y adultos. Teniendo un momento de convivencia y diversión entre ellos. </div>
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Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-20937164511708706372019-09-11T11:18:00.002-07:002019-09-11T11:18:31.423-07:002do. Congreso Nacional sobre la Concientización de las Enfermedades Raras<div class="separator" style="clear: both; text-align: center;">
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Se llevo a cabo en el Auditorio del Hospital Infantil organizado por la Alianza Nacional por las Enfermedades Raras, siendo anfitriones Hemofilia en Chihuahua y Enlace Distrofia Muscular Duchenne-Becker. Con la finalidad de crear conciencia sobre la importancia de la detección temprana de estas enfermedades. </div>
<br />Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-13287424141976417872019-09-11T11:11:00.000-07:002019-09-11T11:11:20.148-07:00Programa de Corresponsabilidad 2019<div class="separator" style="clear: both; text-align: center;">
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Los padres de familia en la ciudad de Chihuahua se organizaron un fin de semana para llevar a cabo su actividad como parte del "Programa de Corresponsabilidad", en el que organizaron una "Hamburguesada" a beneficio de niños, jóvenes y adultos.</div>
<br />Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-52661665584542668132019-04-30T11:49:00.000-07:002019-04-30T11:49:57.609-07:00Día del Niño <div class="separator" style="clear: both; text-align: center;">
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<span style="background-color: white; color: #1d2129; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px;">Celebramos el Día del Niño </span><span style="background-color: white; color: #1d2129; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px;">a todos los pequeños de Enlace, en el que pasaron un rato alegre con concursos divertidos, muchos regalos, baile, manualidades, pinta-caritas y la proyección de una película.</span></div>
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<span style="background-color: white; color: #1d2129; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px;">¡Muchas gracias a "Shows Alo Alo" por ayudarnos a festejar a los niños!. </span></div>
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<span style="background-color: white; color: #1d2129; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px;"><br /></span>Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-36996339528629828142019-04-30T11:42:00.000-07:002019-04-30T11:42:34.485-07:00Informe Anual 2018<div class="separator" style="clear: both; text-align: center;">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTXFyMn7F2qziod6PUS8tm8FRJRH39Tj8KGD_ibAGThYFdTlhL3YQpK4CrTtd5QDDt9V6KZCij6mHuAsZ5WnGlwjc3BDUORlbmGEfyBQD3N4dZGNlIAcAGbEeEtOrypCQw6ibJQsYUvwE/s1600/IMG_0516.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1067" data-original-width="1600" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTXFyMn7F2qziod6PUS8tm8FRJRH39Tj8KGD_ibAGThYFdTlhL3YQpK4CrTtd5QDDt9V6KZCij6mHuAsZ5WnGlwjc3BDUORlbmGEfyBQD3N4dZGNlIAcAGbEeEtOrypCQw6ibJQsYUvwE/s400/IMG_0516.JPG" width="400" /></a></div>
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<span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">Informe Anual 2018 de Enlace Distrofia Muscular, a cargo de la Directora Ejecutiva Patricia Batista, la Directora Estratégica Graciela Méndez y la Presidenta del Consejo Directivo Liliana Ochoa.</span><span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;"> </span></div>
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Resumen de actividades realizadas durante el año 2018, y la entrega de reconocimientos al "Programa Padrinos" por 10 y 15 años de estar apoyando a la Asociación. Así como la entrega de reconocimientos especiales al Centro para el Fortalecimiento de la Sociedad Civil, Consultoría BlueWolf y la Corporación Citlali.</div>
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Nada es pequeño...¡Cuando el amor es grande!.</div>
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<br />Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-33302321587398251712018-12-21T10:30:00.002-08:002018-12-21T10:30:19.569-08:00Programa Angelitos 2018<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_KGf4w3L_VpmZMcoRyI9IpF8tbyx8TEWBFURtoc1eMgP0LFnx-yT7CPmkHb-bfNNlAn1EH73KOLDMSguPd-C2r0C_ZrNQTgEq9mvK03kM8UYNjJfBdiQICLBes6gQZVukENYeFw7Vu2k/s1600/IMG_0379.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1067" data-original-width="1600" height="133" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_KGf4w3L_VpmZMcoRyI9IpF8tbyx8TEWBFURtoc1eMgP0LFnx-yT7CPmkHb-bfNNlAn1EH73KOLDMSguPd-C2r0C_ZrNQTgEq9mvK03kM8UYNjJfBdiQICLBes6gQZVukENYeFw7Vu2k/s200/IMG_0379.JPG" width="200" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh48fgHrMxUCEaQUPi-05EejKlnaHU9YqvEnLglvkywgqeGlbUfuiO3SKXAxs7gQzuJ5Ouaksu2-7QEkO-huf26A4XGWRrGDlakgcBjvxqNIUoDrP7OqPn8fofgfn66VBoTvfcuktWPKuY/s1600/IMG_0380.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1067" data-original-width="1600" height="133" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh48fgHrMxUCEaQUPi-05EejKlnaHU9YqvEnLglvkywgqeGlbUfuiO3SKXAxs7gQzuJ5Ouaksu2-7QEkO-huf26A4XGWRrGDlakgcBjvxqNIUoDrP7OqPn8fofgfn66VBoTvfcuktWPKuY/s200/IMG_0380.JPG" width="200" /></a></div>
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<span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px; text-align: start;">El 15 y 16 de diciembre en Fashion Mall, Enlace tuvo su último evento del año para recaudar fondos y seguir dando una mejor calidad de vida a niños y jóvenes con Distrofia Muscular.</span></div>
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<span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">Agradecemos enormemente la participación en el evento "Angelitos 2018" de los diversos shows y voluntarios que nos ayudaron a que esta actividad fuera un éxito total</span><span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">.</span></div>
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<span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;"> </span><span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px; text-align: start;"> </span><br style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px; text-align: start;" /><span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px; text-align: start;">¡Se llego a la meta gracias a toda la gente que se acerco a nosotros, GRACIAS por cambiar tu vida, cambiando vidas!.</span></div>
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<br />Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-6885121144585666612018-12-17T11:35:00.001-08:002018-12-17T11:35:22.922-08:00Posada Enlace 2018<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEit7FAG7vOCsl2mbEcucoY6SqWqRMo8pO54FcxY-uLiihJLd5MXOWbmzvnwcdo8Jk4k_O4Y8E2yE8tkWxSiIZ6j8G1xZS9shfJskKuxh1Vrd9PmlqISXdvChcvi1h3l0N6T5uqNIJD2xfU/s1600/IMG_0280.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1067" data-original-width="1600" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEit7FAG7vOCsl2mbEcucoY6SqWqRMo8pO54FcxY-uLiihJLd5MXOWbmzvnwcdo8Jk4k_O4Y8E2yE8tkWxSiIZ6j8G1xZS9shfJskKuxh1Vrd9PmlqISXdvChcvi1h3l0N6T5uqNIJD2xfU/s400/IMG_0280.JPG" width="400" /></a></div>
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<span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">Enlace estuvo de fiesta con la tradicional posada, en la que se paso de un rato agradable con baile, regalos, piñata, sonrisas y muchas sorpresas para las familias, nuestros niños y jóvenes. </span></div>
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<span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">¡Feliz Navidad a todos!</span></div>
<br />Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-49499087377619652142018-11-07T08:21:00.000-08:002018-11-07T08:21:12.773-08:00Convivencia Familiar<div class="separator" style="clear: both; text-align: center;">
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Durante las Jornadas de Terapia Pulmonar los beneficiarios se divierten con sus familias en el "Rincón Literario", el cual se encuentra en las instalaciones de Enlace y que fuera donado en su totalidad por los jóvenes del Tec de Monterrey. Gracias a esto, las familias pasan un agradable rato con risas y diversión. </div>
<br />Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-68492326700935239822018-09-11T08:25:00.000-07:002018-09-11T08:25:03.256-07:00Día de Concientización Duchenne <div class="separator" style="clear: both; text-align: center;">
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<span lang="ES-MX" style="background: white; font-family: Arial, sans-serif; font-size: 12pt; line-height: 107%;">El 7 de septiembre,
7/9 en referencia a los 79 exones en el gen de la “distrofina”. Pequeña
falla genética en solo 1 de estos exones, es todo lo que se requiere para causar
la distrofia muscular de Duchenne.</span></div>
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<span lang="ES-MX" style="background: white; font-family: Arial, sans-serif; font-size: 12pt; line-height: 107%;"><span lang="ES-MX" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; font-size: 12pt;">El Día Mundial de la Concientización de Duchenne es para
informar y concienciar a la sociedad sobre la Distrofia Muscular</span><span lang="ES-MX" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; font-size: 12pt;">, </span><span lang="ES-MX" style="background-color: transparent;">las
familias son atendidas por la Asociación, en conjunto con el Hospital
Ángeles para que, de esta forma, puedan iniciar con el proceso requerido de
terapias, medicación y todo lo necesario para reforzar y mejorar la calidad de
vida de los pacientes. Actualmente no existen procedimientos médicos que logren
curar esta enfermedad, sin embargo, un buen tratamiento médico y diagnóstico
oportuno logran mejorar considerablemente su calidad de vida.</span> </span></div>
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<span lang="ES-MX" style="font-family: "Arial",sans-serif; font-size: 12.0pt; mso-ansi-language: ES-MX;">El día viernes 7 de septiembre se
llevó a cabo la magna conferencia: “Aspectos Cardiológicos Duchenne”,
impartida por la Cardióloga: Doctora Blanca Olivia Garfio Pacheco; seguida de
una actividad de concientización, como lo fue la entrega de información de la
enfermedad, foto con los asistentes y el Manifiesto Duchenne.<o:p></o:p></span></div>
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<span style="font-family: Arial, sans-serif;">Muchas gracias a quienes nos acompañaron en este Día Mundial Duchenne.</span></div>
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<span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;"><br /></span>Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-74221548540775354672018-08-17T12:03:00.001-07:002018-08-17T12:03:28.966-07:00Encuentro Anual 2018<div class="separator" style="clear: both; text-align: center;">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQKTht5KCeaIEzgs5KH-Jhdad-fBuCk8IcJXy5UG66wGl2NaEvK-ZUq94uSow6TFwkqNrjXXqA8rh-W_FT9ZMQSA2_2MtYj4Hn1XOngKyT4et4Y7LF6Xo08M4fg6WnPMOk_gy8ydcLSq8/s1600/editado.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="471" data-original-width="1600" height="117" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQKTht5KCeaIEzgs5KH-Jhdad-fBuCk8IcJXy5UG66wGl2NaEvK-ZUq94uSow6TFwkqNrjXXqA8rh-W_FT9ZMQSA2_2MtYj4Hn1XOngKyT4et4Y7LF6Xo08M4fg6WnPMOk_gy8ydcLSq8/s400/editado.jpg" width="400" /></a></div>
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<span aria-level="4" class=" _2iem" role="heading" style="font-family: inherit; font-size: 14px; line-height: 18px;">En este “Encuentro Anual 2018” se entregaron reconocimientos, pláticas y conferencias a los padres de familia en donde se les brindó información actualizada sobre la enfermedad. Un show de entretenimiento para los niños y jóvenes, también se realizó un recorrido por las instalaciones en donde los beneficiarios tuvieron un momento de convivencia y diversión entre ellos. N</span><span style="font-family: inherit; font-size: 14px; text-align: start;">uestros expositores: la Lic.Graciela Méndez Covarrubias, Dra. Magdalena Clemente Ponce de León, Lic. Marcia Jaramillo Peregrina, las chicas del Show de Entretenimiento, al cantante Chris Valles, las instalaciones del Museo Semilla y sus guías, en la participación del "Encuentro Anual" para padres de familia y beneficiarios de Enlace. ¡Muchas gracias a todos los que asistieron! </span></div>
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Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-40376069723858991032018-07-26T10:39:00.000-07:002018-07-26T10:39:48.075-07:00Programa de Corresponsabilidad Ciudad Juárez 2018<span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;"><br /></span>
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<span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">Evento padres de familia:</span></div>
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<span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">"Programa de Corresponsabilidad 2018", los padres de familia en ciudad Juárez cumplieron con su actividad realizando la venta de diferentes productos y promocionando a la Asociación de Enlace Distrofia Muscular con la gente que estaba de paseo por las calles del centro. </span></div>
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<span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">Muchas gracias a todos los que participaron y a los que llegaron a apoyar esta causa. </span></div>
Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0tag:blogger.com,1999:blog-7862852016812471193.post-48858297895162438872018-07-10T09:44:00.000-07:002018-07-10T09:44:06.718-07:00Programa de Corresponsabilidad 2018<div class="separator" style="clear: both; text-align: center;">
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<span aria-level="4" class=" _2iem" role="heading" style="font-family: inherit; font-size: 14px; line-height: 18px;">El pasado 24 de junio, los padres de familia en la ciudad de Chihuahua cumplieron con su actividad planeada en el "Programa de Corresponsabilidad 2018". </span><span style="font-family: inherit; font-size: 14px;">Muchas gracias a todos los que participaron y los que llegaron a apoyar esta causa. </span><span style="font-size: 14px;">Queremos mandar un especial agradecimiento a los clubs de Chihuahua por su apoyo en el evento de los padres de familia de Enlace, muchas gracias por su entusiasmo y sus ganas de ayudar. </span><span style="font-size: 14px;">Estamos en espera de la actividad de los padres de familia de ciudad Juárez.</span></div>
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Enlacehttp://www.blogger.com/profile/14374813023939438920noreply@blogger.com0